I was diagnosed at 44 in 2012 with young onset Parkinson's disease (YOPD).
Today, seven years diagnosed, I try to remain positive and concentrate on what I can do, rather than dwelling on what I can’t.
In January 2017 I invented a word; Parkinality; Parkin(sons) (person)ality. I started a website about living with YOPD, www.parkinality.co.uk, which has links to all parkinality projects .
My latest project is as a contributor to Shaky radio, reading poetry and talking about my PD life.
Since 2017 I have a blog, YouTube channel, Facebook page, and a monthly column in the Bishop’s Stortford Independent Newspaper, along with various interviews.
Andy Johnson and I have co-written a play, ‘These Three Words’ which reached the final of a local playwright competition. It highlights the effect a diagnosis has on friends and family.
I am also writing my second poetry book. The first, The Parkinality Poetry Book was published in July 2019.
This first book has a subtle message, hoping it will appeal beyond the Parkinson's community.
I write and perform at local festivals and open mic nights. 30% of monies from royalties earned going to The Cure Parkinson’s Trust.
I cannot cure PD, but I can raise awareness, to create more understanding and highlight the urgent need for a cure.